Fibromyalgia is…

Fibromyalgia impacts my life. A LOT. It’s the elephant in the room, the fly in my ointment, and any other metaphor you can think of. But, as with everything, there are positives and negatives.

Fibromyalgia is…painful. A burning, or stabbing, or aching, or hot pain. Every day.

Fibromyalgia is…changeable. One day I can function well; have a nice day with the baby, do some work, walk the dog, do the chores and have a nice evening with my husband. Then the next day I can be so fatigued and beset with a lethargy that makes just surviving hard.

Fibromyalgia is…resilience. I am a very resilient person, I push through a lot of pain on a daily basis to do what I want to do.

Fibromyalgia is…balance. I must balance. Work/life. Exercise/rest. Everybody ought to, I just get the warning signs sooner.

Fibromyalgia is…a constant cost/benefit analysis. I always calculate the benefits and the consequences of decisions, so decision making is a bit more complex. Recently my husband had free tickets to see The Hobbit at the cinema, but it started at 9pm. I knew immediately that the cost/benefit scenario didn’t stack up. Even if I wanted to see that movie, it wouldn’t have been worth getting to sleep after midnight and then up with the baby in the night and early the next morning.

Fibromyalgia is…heartbreaking, when you see the opportunity costs everyday. When you disappoint your husband. When you don’t have that little extra energy for your baby.

Fibromyalgia is…a teacher. I have learnt so much about life, about my body, about the world, about myself.

Fibromyalgia is…hard. But it won’t stop me trying, everyday, to follow my passions.

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